Evrysdi improved motor function and quality of life in children and adults with SMA, a real-world study in Hong Kong shows.
At 35, columnist Alyssa Silva is making the transition from pediatric to adult healthcare — a daunting change given the ...
Electrical signals called far-field potentials may help track disease progression in SMA, a new study suggests.
What do an unexpected job loss, a skunk, and a devastating diagnosis have in common? Columnist Helen Baldwin explains.
Whole-body quantitative MRI, or qMRI, was found to detect subtle changes over time in the muscles of SMA adults, better than ...
Sleep problems, common in SMA, may involve both nighttime breathing issues linked to muscle weakness and brain changes, per a ...
The depersonalization of medical devices can affect one's sense of identity, says columnist Sherry Toh, who argues for more ...
Surgery to implant magnetically controlled growing rods is safe and effective for managing scoliosis in children with SMA ...
Spinal muscular atrophy (SMA) is an inherited neurodegenerative disorder characterized by progressive muscle weakness. SMA patients do not produce enough of a protein called survival motor neuron (SMN ...
Children with spinal muscular atrophy (SMA) given the gene therapy Zolgensma (onasemnogene abeparvovec-xioi) in infancy are maintaining motor milestones after up to a decade of follow-up, according to ...
Our online provider finder is designed to help spinal muscular atrophy (SMA) patients and caregivers find a specialist near them. Enter your information below to locate healthcare providers in your ...
One of my rules is that nurses cannot care for me when they’re sick. Although this creates challenges, I don’t want to risk exposure. Because I live with SMA, the repercussions of a virus or other ...
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